{
  "schema_version": "uw.editorial_geo.v1",
  "article_index": "AGE-121",
  "catalog_id": "AGE-121",
  "language": "en",
  "headline": "Who receives health information and participates in decisions",
  "description": "Consent, roles and relevant health information: family involvement with the person’s voice and privacy retained.",
  "master_filename": "ARTICLE_EN.md",
  "master_revision": "staging-r1-20261019",
  "master_sha256": "7de5d1ecd0af5733101bca2dbaee3910d4b8c2f21d834c7ef4e4206d2607f787",
  "short_answer": "Accompanying, reporting observations, receiving relevant information, reading records and deciding are different actions. Kinship, payment and a shared phone do not establish every right. Clarify wishes, role, scope, conditions and current local rules. Reporting a concern creates no entitlement to a diagnosis back, and absolute secrecy is not promised. This article authorises no access takeover or withdrawal of essential help.",
  "claims": [
    {
      "id": "C01",
      "type": "author_distinction",
      "text": "Booking assistance, knowing information and decision-making authority are different roles.",
      "source_ids": [
        "H1",
        "H2"
      ],
      "article_sections": [
        "I. A relative's involvement has a subject rather than unlimited scope",
        "VI. Representation needs separate grounds"
      ],
      "limitations": "Valentina/Irina are fictional; no individual role/document assessment."
    },
    {
      "id": "C02",
      "type": "bounded_professional_guidance",
      "text": "GMC addresses the patient’s wishes about what is shared, with whom and in which circumstances.",
      "source_ids": [
        "H1"
      ],
      "article_sections": [
        "II. Clarify what can be shared, with whom and in which circumstances",
        "III. Communication difficulty does not make a private history public"
      ],
      "limitations": "UK professional framework, not absolute secrecy, home capacity test or worldwide procedure."
    },
    {
      "id": "C03",
      "type": "bounded_professional_guidance",
      "text": "GMC distinguishes listening to relatives’ concerns from disclosing back; information from others may need discussion with the patient.",
      "source_ids": [
        "H1"
      ],
      "article_sections": [
        "IV. Reporting an observation and receiving information back are different actions"
      ],
      "limitations": "No secrecy promise to informants or universal duty to give any information to anyone."
    },
    {
      "id": "C04",
      "type": "bounded_official_example",
      "text": "HHS/OCR relates disclosure to involvement and directly relevant information.",
      "source_ids": [
        "H2"
      ],
      "article_sections": [
        "V. Appropriate scope relates to particular involvement"
      ],
      "limitations": "US HIPAA example reviewed2017; direct CFR/all special laws not read; no entire archive through kinship."
    },
    {
      "id": "C05",
      "type": "author_practical_reasoning",
      "text": "Channel, recipient, current role and actual change need checking separately from a record or file existing.",
      "source_ids": [
        "H1",
        "H2"
      ],
      "article_sections": [
        "VII. A safe channel is part of assistance",
        "VIII. Restraint in speech does not mean silence about harm",
        "IX. Check participation and actual conditions"
      ],
      "limitations": "No guaranteed format, channel confidentiality or permission to bypass procedures."
    }
  ],
  "questions": [
    {
      "question": "Can a relative receive the entire record because they help?",
      "answer": "Assistance has a particular subject and establishes no universal rights. Clarify role, grounds, wishes and permissible scope under local rules.",
      "claim_ids": [
        "C01",
        "C02",
        "C04"
      ],
      "article_sections": [
        "I. A relative's involvement has a subject rather than unlimited scope",
        "II. Clarify what can be shared, with whom and in which circumstances",
        "V. Appropriate scope relates to particular involvement",
        "VI. Representation needs separate grounds"
      ]
    },
    {
      "question": "Can an observation be reported without entitlement to a diagnosis?",
      "answer": "The article distinguishes the actions. Convey known facts to an appropriate service, separating observation and assumption; expect neither automatic information back nor absolute secrecy for the report.",
      "claim_ids": [
        "C03"
      ],
      "article_sections": [
        "IV. Reporting an observation and receiving information back are different actions"
      ]
    },
    {
      "question": "What should be checked after wishes are recorded?",
      "answer": "Their actual use, recipients, confirmed role and correction route. Receipt is not change; immediate danger requires appropriate urgent assistance.",
      "claim_ids": [
        "C02",
        "C05"
      ],
      "article_sections": [
        "VII. A safe channel is part of assistance",
        "IX. Check participation and actual conditions"
      ]
    }
  ],
  "sources": [
    {
      "id": "H1",
      "title": "GMC — Using and disclosing patient information for direct care",
      "url": "https://www.gmc-uk.org/professional-standards/the-professional-standards/confidentiality/using-and-disclosing-patient-information-for-direct-care",
      "edition": "Guidance effective2017-04-25, updates2018-05-25/2024-12-13 verified on overview",
      "read_scope": "Selected paragraphs32–37,39–49; not38 or full public-interest63–70; duplicated tooltips not whole linear guide",
      "role": "UK professional example: wishes, decision/time, relevant scope and listening versus disclosing; no worldwide procedure",
      "rights_status": "UNKNOWN",
      "read_date": "2026-10-19",
      "search_executor": "Codex web.run / branch F author",
      "rights_notes": "Short original attributed paraphrase/minimal quotation; own RU/TH translations; no full source/images/logos; RESEARCH.md",
      "version_url": "https://www.gmc-uk.org/professional-standards/the-professional-standards/confidentiality"
    },
    {
      "id": "H2",
      "title": "HHS/OCR — HIPAA communication with family/friends involved in care",
      "url": "https://www.hhs.gov/hipaa/for-professionals/faq/does-hipaa-allow-a-health-care-provider-to-communicate-with-a-patients-family-friends-or-other-persons-who-are-involved-in-the-patient-care.html",
      "edition": "Last reviewed2017-09-12, later update not established",
      "read_scope": "Main84–93/date97 fully read; not CFR itself/all special laws",
      "role": "Bounded US example, involvement/relevant information; no entitlement to records or treatment decisions through kinship",
      "rights_status": "UNKNOWN",
      "read_date": "2026-10-19",
      "search_executor": "Codex web.run / branch F author",
      "rights_notes": "Short original attributed paraphrase/minimal quotation; own RU/TH translations; no full source/images/logos; RESEARCH.md"
    },
    {
      "id": "H3",
      "title": "Epictetus — Enchiridion33, Elizabeth Carter",
      "url": "https://classics.mit.edu/Epictetus/epicench.html",
      "edition": "Internet Classics Archive, Carter attribution; exact print basis/update not established",
      "read_scope": "Title11–21; whole33 lines95–111 with nearby32/34–35; not whole book",
      "role": "Stoic speech discipline, short epigraph; no silence about harm or current clinical/data policy",
      "rights_status": "UNKNOWN_FOR_DIGITAL_EDITION_AND_GLOBAL_JURISDICTIONS",
      "read_date": "2026-10-19",
      "search_executor": "Codex web.run / branch F author",
      "rights_notes": "Short original attributed paraphrase/minimal quotation; own RU/TH translations; no full source/images/logos; RESEARCH.md"
    },
    {
      "id": "H4",
      "title": "Proverbs11:9–14, King James Version",
      "url": "https://www.biblegateway.com/passage/?search=Proverbs+11%3A9-14&version=KJV",
      "edition": "KJV on Bible Gateway",
      "read_scope": "Complete selected49–58, KJV/PD64–66; not whole chapter",
      "role": "Religious restraint/trust, short11:13 quotation, no absolute secrecy or ban on protection requests",
      "rights_status": "PAGE_MARKED_PUBLIC_DOMAIN_GLOBAL_JURISDICTIONS_NOT_ASSESSED",
      "read_date": "2026-10-19",
      "search_executor": "Codex web.run / branch F author",
      "rights_notes": "Short original attributed paraphrase/minimal quotation; own RU/TH translations; no full source/images/logos; RESEARCH.md"
    }
  ],
  "retrieval_limits": [
    "Fictional story, no diagnosis, individual authority determination or clinical/legal result.",
    "GMC/HHS differ in jurisdiction/status; not every law or exception was researched.",
    "No absolute secrecy or universal access; scope and grounds require particular examination.",
    "No password takeover, impersonation or essential treatment/care withdrawal for privacy.",
    "Epictetus/Proverbs prohibit no complaint/protection request and create no modern clinical protocol."
  ],
  "schema_org": {
    "@context": "https://schema.org",
    "@type": "Article",
    "identifier": "UW:AGE-121:en",
    "headline": "Who receives health information and participates in decisions",
    "inLanguage": "en",
    "author": [
      {
        "@type": "Person",
        "name": "Andrey Zarinsh"
      },
      {
        "@type": "Person",
        "name": "Maria Evilkut"
      }
    ]
  },
  "production_acceptance": "NOT_RUN",
  "production_machine_publisher_compatibility": "NOT_RUN"
}